Merrick Syndrome - Search Videos

Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia. We work every day to keep him happy, protect the skills he still has, and share his story to raise awareness and keep hope alive for a cure. Follow our journey. Help us raise awareness. 💜 #ChildhoodDementia #SpecialNeedsParent #sanfilipposyndrome #LifeWithDisability #OurStory

Merrick was 4 years old in the beginning clip of this video. He’s 11 now — and he has fewer words and skills than he did back then. Sanfilippo syndrome causes childhood dementia. We work every day to keep him happy, protect the skills he still has, and share his story to raise awareness and keep hope alive for a cure. Follow our journey. Help us raise awareness. 💜 #ChildhoodDementia #SpecialNeedsParent #sanfilipposyndrome #LifeWithDisability #OurStory

176 views3 months ago

TikTokhope.for.merrick

This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜

This was before we knew my son has childhood dementia It is due to Sanfilippo syndrome, a rare progressive disease that causes brain damage over time I wish we could go back… to laugh a little louder with him love him a little harder And join the fight against this disease with all our strength before it had already taken so much 💜💜💜

1K views2 months ago

TikTokhope.for.merrick

We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow

We are amassing a lifetime supply of medicine measuring cups. This is Merrick. He’s 11 and has Sanfilippo syndrome, a rare neurodegenerative disease that causes dementia in children. One symptom that has gotten worse over the past 6 months is headaches. 💔🤕 We only wish there was more we could do to help him 😔 #sanfilippo #childhooddementia #raredisease #headaches #approvehopenow

442 views2 months ago

TikTokhope.for.merrick

Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish

Bumblebee has always been his favorite Transformer. 🤖🐝 So this couldn’t have been sweeter for him. Merrick is battling Sanfilippo syndrome, a progressive neurodegenerative disease often called Alzheimer’s for children. He deserved this win 🏆 #sanfilippo #regression #childhooddementia #bumblebeetransformers #makeawish

319 views2 months ago

TikTokhope.for.merrick

POV: your son likes the people mover almost as much as the roller coasters 🎢 Merrick is autistic and has Sanfilippo syndrome, a rare disease that causes childhood dementia. Slowing down helps us enjoy the time we have with him. A good reminder we don’t always have to move fast to get the best thrills.

POV: your son likes the people mover almost as much as the roller coasters 🎢 Merrick is autistic and has Sanfilippo syndrome, a rare disease that causes childhood dementia. Slowing down helps us enjoy the time we have with him. A good reminder we don’t always have to move fast to get the best thrills.

311 views3 months ago

TikTokhope.for.merrick

Merrick has Sanfilippo syndrome, a terrible progressive neurodegenerative disease that is ultimately terminal. If we had known back then we would have been so sad of course but also would have done everything we possibly could to slow down the skill loss we’ve seen over the past 6 years. Early diagnosis matters! If your child has any delays or is neurodiverse you should consider genetic testing. There is no downside to doing it. The best thing to happen is you learn nothing new! #sanfilippo #reg

Merrick has Sanfilippo syndrome, a terrible progressive neurodegenerative disease that is ultimately terminal. If we had known back then we would have been so sad of course but also would have done everything we possibly could to slow down the skill loss we’ve seen over the past 6 years. Early diagnosis matters! If your child has any delays or is neurodiverse you should consider genetic testing. There is no downside to doing it. The best thing to happen is you learn nothing new! #sanfilippo #reg

TikTokhope.for.merrick

This is what childhood dementia looks like… This is Merrick, he has Sanfilippo syndrome and is regressing and losing more words and skills every day because of this progressive neurodegenerative disease. He is in a race against time to get treatment that could save his life. #sanfilippo #autism #childhooddementia #diagnosis #regression

This is what childhood dementia looks like… This is Merrick, he has Sanfilippo syndrome and is regressing and losing more words and skills every day because of this progressive neurodegenerative disease. He is in a race against time to get treatment that could save his life. #sanfilippo #autism #childhooddementia #diagnosis #regression

357 views2 months ago

TikTokhope.for.merrick

I truly believe that without this disease, he would have taken the world by storm. This is my favorite video of 2026 (so far). My son Merrick is the most determined kid I know—driven, stubborn, and fiercely independent, no matter what Sanfilippo is trying to take away from him. Sanfilippo syndrome is a rare progressive disease that causes dementia in children. Here he is, proudly getting himself a drink of water from the sink. He has a little red reusable solo cup we got him just so he could kee

413 views3 months ago

TikTokhope.for.merrick

Merrick has a rare neurodegenerative disease called Sanfilippo syndrome. We were excited to see a picture of him being a helper at school this week. He has struggled with tasks his whole life but recently things have been getting harder and harder for him as he loses skills. He was always the sweetest little helper. | Hope for Merrick

615 views6 months ago

FacebookHope for Merrick

Every minute, Sanfilippo Syndrome is affecting children like my son Merrick. This disease causes childhood dementia, and we need your help to fund promising research and hopeful clinical trials for a cure. If you are able to donate or share this fundraiser, we deeply appreciate it. Every donation, every share gets us closer to a cure for children with Sanfilippo Syndrome. 👉 HopeforMerrick.com #INeedACure #GivingTuesday #sanfilippo | Hope for Merrick

579 views4 months ago

FacebookHope for Merrick

As the years progress so does his disease. Merrick has Sanfilippo syndrome, a rare disease that causes childhood dementia. There is a gene therapy that has proven to be effective in clinical trials and could save his life but it is stuck on a shelf while we wait for the long slow approval process. I just want someone in the government to please pay attention to our kids. They need your help to speed this up. #approvehopenow #sanfilippo #childhooddementia #raredisease #fda | Hope for Merrick

6.8K views5 months ago

FacebookHope for Merrick

Snow storm = fresh snow to eat ❄️😆 Merrick is 11 and has Sanfilippo syndrome. A rare neurodegenerative disease that is like Alzheimer’s but in children. Showing off he still has those fine motor skills when it’s really worth it! We never lost power but I guess we still decided it was time to take some drastic measures. Were we eating snow angels? Maybe?! 🤔 🥄👼 #snowstorm #sanfilippo #childhooddementia #autism #sensory | Hope for Merrick

1.2K views2 months ago

FacebookHope for Merrick

This is Merrick he’s 11 now and last year we found out he has Sanfilippo syndrome. It’s a progressive neurodegenerative disease —basically dementia in children. For the past 10 years on the weekend after Thanksgiving we have gone to a local farm to get a tree. This year it doesn’t feel possible because Merrick is in a phase of the disease where kids are extremely impulsive and destructive. We had been hoping a promising gene therapy treatment would be available to him earlier this year. But it’s

11K views4 months ago

FacebookHope for Merrick

All I want for Christmas is a cure for Sanfilippo syndrome 💜🎄🤞🙏 | Hope for Merrick

1.4K views3 months ago

FacebookHope for Merrick

Dr. Melissa T. Merrick | Prevent Child Abuse America

preventchildabuse.org

Sundays are supposed to be lazy but in our house we have Sanfilippo syndrome to contend with so we are always moving at warp speed. Not pictured is when my husband did take Merrick to the playground in the middle of the day and that also helped release some energy. And we stopped and got a happy meal on the way home from riding escalators which thrilled Merrick obvi. #sanfilippo #autism #sundayvibes #dayinthelife #specialneedsparenting | Hope for Merrick

1.3K views5 months ago

FacebookHope for Merrick

Another day finding an old video showing skills Merrick has lost to #Sanfilippo syndrome He doesn’t have these play or language skills now 💔 He does still love seeing planes flying up high in the sky though 💜 #childhooddementia #raredisease #airforcemuseum #approvehopenow

786 views5 months ago

TikTokhope.for.merrick

💜This is Merrick💜 He has a rare progressive terminal disease called Sanfilippo syndrome. He was diagnosed with speech delay when he was 2, then autism and ADHD when he was 4. He started to regress when he was 5/6 years old and we had no idea why. I searched for late regression in autistic kids and never found any answers. Last year when Merrick was 10 we were doing genetic testing for an unrelated eye disease that runs in my family and were blindsided by the results... We don’t know how long w

13.6K views8 months ago

FacebookHope for Merrick

Stickler Syndrome | Causes, Signs, & Symptoms | Marfan Foundation

Merrick has Sanfilippo syndrome, or MPS-IIIA. Sanfilippo syndrome, also known as Mucopolysaccharidosis type III (MPS III), is a rare, inherited genetic disease that causes fatal brain damage. It's characterized by a buildup of long sugar molecules called glycosaminoglycans (GAGs) in the body due to missing or defective enzymes. This buildup leads to neurological deterioration, health problems in various organs, and a shortened life span of only 10-20 years. Early diagnosis matters so you can tak

17.5K views11 months ago

TikTokhope.for.merrick

Today is my birthday. I’m adding another year while my son Merrick is losing years to Sanfilippo syndrome. Sanfilippo syndrome is a rare and fatal childhood disease. Awareness matters. My birthday wish is for more time. For my son, and for all families living with Sanfilippo syndrome. #SanfilippoSyndrome #RareDiseaseMom birthdaywish | Hope for Merrick

1.8K views4 months ago

FacebookHope for Merrick

POV: Your only child is thrilled for his Make-A-Wish trip... but he doesn’t understand why he gets one. Merrick has Sanfilippo syndrome — a rare, heartbreaking disease similar to Alzheimer’s, but in children. We’re so grateful to the Make-A-Wish team for helping us create something truly special for him. #sanfilippo #makeawish #disneyworld #childhooddementia #raredisease | Hope for Merrick

2.1K views5 months ago

FacebookHope for Merrick

I miss this time in our lives when I could still imagine a bright future for him. Before we had ever heard of Sanfilippo syndrome. Or realized that a child could have dementia. Now we just try to stay hopeful for a cure to save his life and give him any future at all. #sanfilippo #childhooddementia #autism #ourstory #approvehopenow | Hope for Merrick

1.3K views2 months ago

FacebookHope for Merrick

This isn’t about politics for us, it’s about a little boy who is fighting an unfair battle against Sanfilippo syndrome—a rare terminal genetic disease that causes childhood dementia. We may never understand Merrick’s love of @realdonaldtrump 😂 but if anyone in the current @whitehouse could help us get the therapy that would save our son’s life we would take that help no question. #sanfilippo #childhooddementia #genetherapy #approvehopenow #RareDisease | Hope for Merrick

860 views5 months ago

FacebookHope for Merrick

One day you’ll be doing genetic testing for an eye disease that runs in your family. It’s very important you say YES to the additional wide array genetic testing. Because you will find out he actually has something much worse called Sanfilippo syndrome—a progressive terminal disease that causes dementia in children. This is the moment everything shatters... and everything finally makes sense. And you channel all your grief into finding a cure before it’s too late. 💜 #sanfilippo #autism #regress

10.9K views4 months ago

FacebookHope for Merrick

风是自由的，多宝也是！风吹过田野，也吹过坚强的小多宝！#治愈宠#小狗多宝 #萌宠

262 views2 weeks ago

YouTubeMarco Merrick

Make It Better for Liiiiiiife 🖤

1.2K views3 weeks ago

YouTubeMerrick Henry

Hope for Merrick on Instagram: "My son has childhood dementia because of Sanfilippo syndrome. A rare neurodegenerative disease that causes progressive skill loss and a very short life. When he was 3 years old he had not started regressing from the disease yet. He was sassy and funny and determined to do things his own way. His only diagnosis at this point was a speech delay we thought he would grow out of. When he was 5 we saw him start to regress and we had no idea why. He had ASD added to his

5.2K views2 months ago

Instagramhope_for_merrick

Hope for Merrick on Instagram: "The perfect song that captures what it feels like to be slowly losing your child to Sanfilippo syndrome doesn’t exi— It’s a rare disease without a cure. Every day without access to a cure is harder for him and harder on our hearts. #sanfilippo #childhooddementia #approvehopenow #raredisease #ourstory"

4K views2 months ago

Instagramhope_for_merrick

Exploring the Penny Gaff Shop: Joseph Merrick's Story

21.3K views3 months ago

TikTokrussellus

See more